So where are we?
We will do another MRI in six months. If the tumor shows no growth at that time then we can go back to once a year MRIs. Concerns to watch for with this nodular tumor:
* sudden onset of pain. If this happens, it could mean the tumor has turned malignant. There is a 10% chance over our son's lifetime that this tumor may turn malignant. If the tumor shows rapid sudden growth it could also be a sign of malignancy. It is a serious concern that warrants our vigilance.
* obstructed airway. The tumor is touching the sides of Philip's windpipe but it is not compressing it at this time. We will watch for any changes in breathing or swallowing.
Otherwise, this latest MRI of his head, neck, spine, chest and abdomen showed no other signs of tumor activity and for that we are greatly relieved.
We again are incredibly blessed by the outstanding care we continue to receive from Dr. Korf, other physicians within his UAB NF Clinic as well as the clinic genetic counselors and staff. Thank you for your thoughts and prayers!